Saturday, April 11, 2009
“A Bone Fractured Fairytale: My Year Lost in Cancer Land,” will have a closing reception open to the public on Saturday, April 25, 2009 at FB3 Art Gallery from 3PM-5PM. It documents the experiences of 23 year-old Jennifer Brunner during her treatment for bone cancer at Kosair Children’s Hospital through documentary photography, artwork, and essays. The art exhibit will also be shown from 8AM-5PM Monday-Friday at FB3 Art Gallery until April 30, 2009. Due to mature subject matter, this show is not recommended for those under the age of 13.
Tuesday, September 30, 2008
It was entirely *"inconceivable!"* to me that I would end up in an oncologist's office with a diagnosis of bone cancer. I think that the doctor was surprised at how well I took the whole thing. I didn't cry. Honestly, one of the first thoughts that ran through my head when I was diagnosed was not, "Oh no, I'm going to die!" but "Rats! My healthy living example is totally ruined now. Nobody is going to want unsolicited health advice from me anymore."
In the weeks following my diagnosis, I became a bitter ex-nutritionist. People would stare at me in shock as the former gym rat chain-smoked seven cigarettes in one hour. If anyone dared to say anything, I would just shrug my shoulders and say something like, "Well, I'm probably going to die anyway so I might as well enjoy myself," or "I just suffered through a three-day session of chemotherapy which is literally intravenous mustard gas. Compared to that, these are like vitamins." These are great ways to cut the conversation awkwardly short. You really can't argue with it. When people think you're going to die, they are afraid to say anything to upset you. However, my fiance suggested that I might give myself lung cancer while I had bone cancer, and then I'd really be in trouble. I have no scientific argument against this, except to say that I think there is some kind of rule about somebody not getting two cancers at one time. If there isn't, then there should be.
Anyway, I eventually came to my senses and abandoned the stress-induced chain smoking (bad Jennifer!). But my previous dietary restrictions have become quite relaxed. If somebody wants to have a steak, go have a steak. You want to eat a piece of apple pie? Have at it! And I don't run 20 miles anymore, because that would entail a dressing change on my line complete with sterile procedure and a headache (if you don't know what I am talking about, be glad that you don't). And I don't want to be a nutritionist anymore. If I were to enter this profession, I think that either everyone or no one would want to see me. Just read the following scenarios to see what I mean:
To someone struggling with their weight: "Dangerous stimulant diet pills are great way to lose weight! Just take buckets of diet pills and then eat an entire chocolate cake in one sitting! Who says that you can't have your cake and eat it, too? Oh, those heart palpitations are no big deal..."
To the diabetic: "Oh yeah, go ahead and invest in a large warehouse-size box of candy bars. That's a much more enjoyable way to control your blood sugar than those stupid shots! And hey, you know if it doesn't work out for you, you were probably going to die anyway..."
To someone who drinks too many caffeinated drinks: "Oh, you don't have to stop drinking nine cups of coffee a day in order to control your jittery nervousness! Just go out and get yourself a six pack and sit in front of the TV every night. That will calm you right down! You might want to consider smoking too; it's a very effective method for dealing with stress."
To someone with cancer: "Since you're trying to gain weight, I would discourage you from eating vegetables or fruit. No. Buy several cartons of your favorite ice cream and eat them all day, all the time - breakfast, lunch, and dinner." Oh wait, I actually was told this. Due to severe mucositis (don't ask), I subsisted on ice cream for about six weeks. You would think that eating ice cream nonstop would be totally awesome, but it's not. This does very unfortunate things to the human digestive system, which I will not even go into here...
And so, I have most decidedly decided to not be a nutritionist. I will let other more annoyingly pious health-nuts than me enter this noble profession in the service of humanity. Writing this article has stressed me out, so I am going to go eat an entire box of Little Debbies now...
* Because of the movie "The Princess Bride," I am not capable of writing the word "inconceivable!" without quotation marks and an exclamation point.
On a totally unrelated note, I was querying on Youtube for the music videos of one of my favorite bands, Le Tigre. Apparently they don't have any, but many fans make their own and post them on there. This one made me smile:
Friday, September 12, 2008
Alas, this only happened in TV-sitcom land where everyone has perfect hair and every story has a perfect ending. In onco-world nobody has perfect hair because they don't have any and every story isn't perfect. The doctor cleared her throat and matter-of-factly informed me that my "odds are much better now. You only have a 30% chance of a fatal recurrence." My chance of survival has almost doubled compared to my initial prognosis, which is pretty cool. But no 90%. No cigar. No really, there are no cigars. Where are my cigarettes? I need one.
As I was leaving her office, the thought of skydiving randomly popped into my head. Why hadn't I gone? Because I had been afraid of dying. But statistically speaking, I have a much better chance of surviving a skydiving attempt than I do at surviving cancer. And why hadn't I taken that trip to Alaska a couple of years ago? Because I was afraid of airplanes. My odds are much better with airplanes than with cancer.
A lot of dreams which I had had over the years floated through my mind, ancient dreams which I had abandoned long ago out of fear. I have had several fears much more legitimate than airplanes, vague ephemeral spooks like J.K. Rowling's Dementors which have haunted my daydreams and sucked the joy out of my life. Everyone has their own personal demons, whether it is some sort of personal tragedy, a fear of rejection, or any number of things. What power did these stupid little demons have over me, other than that which I had freely given? What could they do to me that cancer couldn't do? Why am I still afraid? Cancer is King Kong, and I kicked King Kong's arse - well, at least I 70% kicked King Kong's arse.
That night, I had a very strange dream. I had just gone to my oncologist and received the disappointing news. I had a 30% chance of dying of a cancer recurrence. I drove home and as I pulled into my driveway, I noticed that there were a bunch of zombies running around outside, as if this were just the most natural thing in the world. I noted to myself that I had at least a 50% chance of perishing from zombies, in that weird omniscient way that we just know things in dreams. So of course since I was up on my zombie survival skills, I ran screaming into the woods.
For most people, having a nightmare where they are told that they might die of cancer is bad enough. But noooo...I have to add zombies! I don't know if this makes me a "glass is half-full" kind of person or a "glass is half-empty" kind of person. Apparently my glass is full of zombies.
Anyway it's always those things which you least expect. I had been afraid of airplanes, when really I should have been afraid of cancer. And I had been afraid of cancer, when really I should have been afraid of zombies. Nobody knows when they are going to be hit by a bus or have a vending machine fall on them or be attacked by a rabid herd of flesh-eating lamas. In my mind, I could either submit to a sense of fatalism about the whole thing or get up and fight those zombies. Or cancer. Or whatever. I'm not going to let anybody put an expiration date on me.
In case you are concerned about zombies, our President has addressed this pressing issue. I know that I can sleep at night now.
Thursday, September 11, 2008
The key word in the last paragraph was "hypothetical." In the real world, where my bone marrow hates me, my body decided to stop producing white blood cells. The average person has 5,000 to 10,000 neutrophils, a kind of white blood cell, per milliliter of blood. I have 600. No, that's not missing a 0. This total crapola is a condition called "neutropenia."
This means that I can't get chemo. It also means that I am supposed to lock myself in a hermetically-sealed bubble in my house, insist that visitors enter a special decontamination chamber before risking personal contact, and obsessive-compulsively wipe down furniture and house pets with antibacterial wipes. If I venture outside, I must don a Hazmat-approved Biohazard suit. Yep. Call me Bubble Girl. Actually I am supposed to wear a surgical mask if I leave the house, but I have found that people refuse to get into public elevators with me when I do this. Hmmm, I wonder why?
So anyway, I will not be taking a ride in a chemo limo. Maybe next week?
- Me at 15: "Hey mom, I want a nose ring."
- Mom: "No! You certainly may not young lady."
- Me at 15: "But my grandfather had a nose ring! I'm carrying on the family tradition! I'm taking after dear old Grandpa. If I wanted to rebel, I WOULDN'T get a nose ring. I would be clean-cut."
- Mom: "Well, you do have a point..."
- Me at 15: "I want to get my ears gaged too! I don't even know what gage it is when you have your ears down to your shoulders, but it looks cool.
Monday, September 8, 2008
So I went into the clinic today for a pre-admit this morning, in the hopes of having a hospital admit tomorrow. Alas, it was not to be. My platelets hate me. Eighty-five thousand is not high enough for chemo. I can just imagine any remaining cancer cells being like, "Yay!" and jumping up and down. Maybe I should go get some weed-killer from the garage and rig up a chemotherapy pump with an old lawn mower, an empty milk jug, and some aquarium tubing. I would probably end up poisoning myself, which would sort of defeat the purpose of life-saving chemo. Ugh.On a totally unrelated note, I feel like I have done a poor job of informing people about how "out of it" I get during chemotherapy. They will come in for a pleasant chat, and then are completely unprepared when I fall asleep mid-sentence or start talking to the wall. One actually did go like this (alas, I am NOT exaggerating for comic effect):
- Unsuspecting visitor: Hey Jen! How are you?
- Me: Sooooo gooood. How’re your-jeh?
- Unsuspecting visitor: Just fine. What are you doing there?
- Me: Ummm…er jeh…so how are things go?
- Unsusupecting visitor: Just great. Is that a coloring book with a fish that you are coloring…or…getting marker all over yourself with? Did you mean to draw on your face?
- Me: Imma…ber…How going are…thiiiings?
- Unsuspecting visitor: Not much has changed in the past 5 minutes; everything is still great.
- Me: Uh…so I’m sooo haaapyy that things are great with yourr liiiife…what…eh…how are you?
- Unsuspecting visitor: Um…I’m in a hospital.
- Me: Oh my gosh! Why?!!! (I wish that I were making this line up)
This was when I was on a pain pump Junish/Julyish, and this amusing conversation was later related back to me. I am no longer on a pain pump, so I am more alert. However, I still tend to repeat myself a lot, get confused, and sometimes just stop mid-sentence with no idea of what I was talking about. And I probably won’t remember very much, if anything, except that you showed up (maybe). Thankfully this is mostly temporary, and I regain lucidity about a week following chemo.
So this brings up lots of opportunities for you. If you hate your cousin because she gossiped about you and you found out about it, you can come in and tell me all about it. Then you can pretend that I am your cousin and tell her (me) a piece of your mind and scream at her (me) all that you want. I might fall asleep or be confused and look at you pitifully like “What did I do?!!! …pout, but I will forget all about it in a few minutes or so. Do you have a burning secret which you must tell somebody but that NOBODY can know? I am the perfect solution to that problem! Just pour your heart out to me and know that your secret is perfectly safe because I have forgotten it already. Do you like to boorishly lecture about some arcane subject that nobody wants to hear about? Just come on in and tell me! I will stare blankly at you and make disjointed statements that have nothing to do with anything. When you are expounding about, “And THAT is the crux to discerning the role of internally desiccated socially constructed paradigms in our cohort,” I will nod knowingly and say something intelligent like “strawberry ice cream is yummy but I threw it up all over myself earlier.”
Generally it is not too scary to talk to me and you are free to laugh at me if I say something stupid; I probably will. Several people have come up to me and have been like, “Oh man, I don’t know how to talk to you anymore. I don’t want to offend you.” Trust me, you will not offend me. I am not cancer. This is really cheesy, but true: “I have cancer but cancer doesn’t have me.” I have bouts of crushing existential sadness regarding the general human condition if I let myself listen to a The Cure album for too long, but I don’t really feel sorry for myself because I'm happy to be alive (if that makes sense). If people want to know how I’m feeling or doing that is totally cool. If you cry or whatever, I don’t mind. If you think that your bout with chicken pox was comparable to cancer and you know exactly how I feel, I certainly didn’t have your chicken pox - so for all I know it was as bad. If after a bad case of food poisoning, you wish to compare puke stories – sounds like fun!
Only one time do I remember someone actually making me MAD. This was off chemo, so maybe other people made me mad while I was on chemo and I forgot about it, but anyway... About the only place where I draw the line is if you are “convicted” that I did something to make God angry enough to give me cancer, and you want to “help me get right” with God so that he will give me back my health. I know that I go to Church because God is my personal cosmic vending machine who will give me everything that I want as long as I am a “good Christian” robot who is in the pew every Sunday and goes through all the right motions. Just forget all those things that Jesus (and pretty much any religion or metaphysical system) said about loving people . If I pray for a Cadillac and get it, then I am a good Christian. If my neighbor doesn't, he must have done something wrong. Oh wait, there are little children in the hospital cancer wards? What?! Oh something must be wrong with their spiritual lives! You know, they must have had a gambling problem or something (those elementary school poker tournaments must be stopped NOW).
But honestly, I am too nice to say this to anyone's face. Most likely I will respond by babbling about throwing up strawberry ice cream earlier. And you won’t know if it is because I am really confused or because I just want you to shut up for your own good so that you don’t mess things up with God too much.
Thursday, September 4, 2008
Hey folks! You want to know what movie NOT to buy me for Christmas?! Unless you HATE ME. One guess...